Therapy Unmasked

Understanding PDA From A Professional Mom

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Therapy Unmasked
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Kathryn's Providers:
Dr. Sara Rice Schiff: my kids’ PDA specialist neuropsychologist; based in CA, but also licensed in UT; (925) 639 2404 or srpneuropsych@gmail.com
Madison Martinez, CSW: my kids’ PDA-affirming therapist; she also offers super helpful parenting sessions; Tree of Life Children’s Center; (801) 605-3086
Dr. Lindsey Tubaugh: my kids’ PDA-affirming pediatric audiologist; Kai and Shipton have Misophonia and Auditory Processing Disorder and wear low-gain hearing aids; lowering sensory overload has been helpful to managing PDA; Little Heroes Pediatric Hearing Clinic; (801) 996-7510
The Neurobehavioral Center for Growth: my kids had positive experiences in private and teens’ group therapy here in the recent past until their provider moved locations. One of my IRL friends was able to get the PDA profile added onto her child’s Autism diagnoses when evaluated here recently. (801) 683-1062
The OCD & Anxiety Treatment Center: Exposure and Response Therapy; Kai qualified for the Intensive Outpatient Treatment Program; at the time Kai participated, the program was child-led; many of our PDA’ers also have high levels of anxiety; when addressed at the right time (ie-Kai was 15 YO), with the right providers, and in the right ways, managing anxiety can be helpful for PDA. Have courage to modify or even walk away if it isn’t a good fit; (801) 298-2000
Stacey Browning: Shipton’s PDA-aware feeding therapist at the ARFID/intensive feeding clinic at Primary Children’s Rehab; (801)-397-8721
Emily Wilcox, DNP, APRN, PMHNP-BC: Consider speaking with your kids’ doctor about medications; while there are no medications currently available for PDA specifically, managing anxiety and offering support for ADHD and Autism through medications, paired with therapies, has been helpful for my kids. My two youngest kids (under 18 YO) have their medications managed by Emily at Matt’s Place; (801)-614-8400
Alysha Stokes, APRN FNP-C: my kids’ favorite provider at their pediatrician’s office; I cannot say enough good about her intuition and collaborative nature; Farr West/Brigham City Pediatrics; (435)-734-2433
PDA North America PDA-affirming providers list: listed by state; we currently don’t have many options in UT, but I’m hopeful it will grow!  https://pdanorthamerica.org/pda-affirming-providers/
Social Media Support Groups:
PDA North America: https://www.facebook.com/share/19GtAx2EcZ/?mibextid=wwXIfr
Kristy Forbes; Adult coach who has PDA herself: https://www.facebook.com/share/1C8RW8SDGz/?mibextid=wwXIfr
Sally Cat’s; Adult coach who has PDA herself: https://www.facebook.com/share/1EsHACizug/?mibextid=wwXIfr
Neurowild; Adult coach who has PDA herself as well as one of her children: https://www.facebook.com/share/1BHve5Nsuv/?mibextid=wwXIfr
No Pressure PDA; Adult coach who has PDA herself; https://www.facebook.com/share/1BQqEW16Me/?mibextid=wwXIfr
Occuplaytional Therapist: https://www.facebook.com/share/1AdhKTZJbq/?mibextid=wwXIfr
USA based support group; has adults with PDA mixed with parents of children with PDA: https://www.facebook.com/share/g/1ARA3UVAwc/?mibextid=wwXIfr
Utah Autism Support group; https://www.facebook.com/share/g/15PRHbJ8Le/?mibextid=wwXIfr
Utah Autism Mamma Meetups; https://www.facebook.com/share/g/16MF5qTkkQ/?mibextid=wwXIfr
Toren Wolf: Teen PDA’er around Kai’s age with AuDH + PDA, ARFID, POTS; on IG or YouTube; https://www.youtube.com/@TorenWolf or http://www.instagram.com/@TorenWolf
Books:
NOTE: “Low demand,” “declarative language,” and accepting "equalizing behaviors” are recommended accomodations in order to support people who have PDA.
“Low Demand Parenting,” by Amanda Diekman
“Declarative Language Handbook,” by Linda K. Murphy MS, CCC-SLP
“Navigating PDA in America,” by Ruth Fidler and Diane Gould
“The Whole-Brained Child,” by Dan Siegel, MD and Tina Payne Bryson, PhD
“No-Drama Discipline,” by Dan Siegel, MD and Tina Payne Bryson, PhD
 

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